PATIENT-SUPPORTED SURVEILLANCE REGISTRY FOR PANCREATIC CYSTIC LESIONS: ELECTRONIC CONCEPT OF THE “MAGDEBURG CYST DOCUMENT f.meyer@med.ovgu.de

PE083

PATIENT-SUPPORTED SURVEILLANCE REGISTRY FOR PANCREATIC CYSTIC LESIONS: ELECTRONIC CONCEPT OF THE “MAGDEBURG CYST DOCUMENT

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Germany

Poster Exhibition only

Aim: To address regular monitoring and continuous documentation of test results, a Pancreatic Cyst Passport (PZP) was developed, which is a patient-based registry at the University Hospital of Magdeburg.

The PZP is a medical document that records personal information, relevant cyst characteristics, test results, and specific laboratory values such as tumor markers. The PZP is available in both paper and digital formats, making it instantly accessible on mobile devices, tablets, and PCs during medical examinations. Additionally, a secure QR code option is available, enabling direct access to the PZP website by scanning a QR code. After the patient agrees to the data protection declaration, they receive an email with a personalized link to their own PZP, which is accessible at all times. The data collected is automatically stored in our Magdeburg Registry for Pancreatic Cysts (MRPZ)–which is a protected database.

The collected data is stored in the MRPZ, which is the first nationwide patient-based database for pancreatic cysts in Germany. Data collection began in October 2023. This will provide a realistic overview of the epidemiology of pancreatic cysts Another primary goal of this project is to promote clarity and transparency in the doctor-patient relationship. Simultaneously, it aims to minimize information loss, facilitating collaboration among various specialists to ensure the best possible treatment for patients and avoid unnecessary, frequent follow-up examinations.

In the era of medical digitalization, we present an innovative digital tool for patients with cystic pancreas lesions. This tool stores relevant medical information and allows for instant access.